NEWS

ACCESS TO VORASIDENIB IN THE UK

When news first broke of the successful trials of Vorasidenib on Low Grade Glioma (LGG) brain tumour patients, many patients and their families were of the opinion that, at last, there was hope for the future.  But it would appear that, at present, this hope is unfounded for patients here in the UK.

So we are asking you to please sign this petition to put pressure on the suppliers, Servier to make this drug available in the UK.  

https://www.change.org/p/access-to-vorasidenib-in-the-uk

LGGs afflict mainly young people – some have not finished their education, many have just begun their careers, some are hoping to start a family whilst some already have children.  All are desperate for an effective treatment to enable them to live their lives as fully as possible.

Please click on the link to sign the petition.

https://www.change.org/p/access-to-vorasidenib-in-the-uk

SUPPORT for all

Look here for listings which will apply equally to patients and carers, with many services also being available to other family members including children, grandparents and those not directly involved in day to day care but still very much affected by the low-grade brain tumour diagnosis.

Please join the Low Grade Support Group Facebook page.  This is a closed group for low-grade patients and their families.  Apply to join the group and you will be contacted by the administrator, Linda.  Please make sure your Facebook/Messenger settings are such that you can receive a message from her.

From Small Beginnings ....

Astro Brain Tumour Fund was founded in April 2001 to focus purely on low-grade brain tumours; in particular:-
To offer support to those whose lives are touched by this tumour type
To raise funds for research and support projects
To gather and share information
To raise awareness of the challenges of living with a low-grade brain tumour