Latest updates and news


When news first broke of the successful trials of Vorasidenib on Low Grade Glioma (LGG) brain tumour patients, many patients and their families were of the opinion that, at last, there was hope for the future.  But it would appear that, at present, this hope is unfounded for patients here in the UK.

So we are asking you to please sign this petition to put pressure on the suppliers, Servier to make this drug available in the UK.

LGGs afflict mainly young people – some have not finished their education, many have just begun their careers, some are hoping to start a family whilst some already have children.  All are desperate for an effective treatment to enable them to live their lives as fully as possible.

Please click on the link to sign the petition.







SUPPORT for all

We are here to help

Look here for listings which will apply equally to patients and carers, with many services also being available to other family members including children, grandparents and those not directly involved in day to day care but still very much affected by the low-grade brain tumour diagnosis.

Please join the Low Grade Support Group Facebook page.  This is a closed group for low-grade patients and their families.  Apply to join the group and you will be contacted by the administrator, Linda.  Please make sure your Facebook/Messenger settings are such that you can receive a message from her.






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From Small Beginnings ....

Low-grade Glioma Information

Astro Brain Tumour Fund was founded in April 2001 to focus purely on low-grade brain tumours; in particular:-
To offer support to those whose lives are touched by this tumour type
To raise funds for research and support projects
To gather and share information
To raise awareness of the challenges of living with a low-grade brain tumour





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Welcome to Astro Brain Tumour Fund


We are working to find a cure for low-grade astrocytoma, oligodendroglioma, oligoastrocytoma and ependymoma brain tumours by raising money to support low-grade glioma research projects at the most innovative neuro-oncology research centres in the UK.

We also offer information, inspiration and support to help patients, carers, friends and relatives through the challenges of living with a slow growing brain tumour. Our online Facebook support group includes over 300 people from all over the world, and is renowned for its welcoming, encouraging and well informed members who can expand upon all the information contained in this website.

Staffed entirely by volunteers, Astro Brain Tumour Fund will ensure that every penny you donate goes to where it is needed most. We have no overheads, no salaries and no expense accounts to pay. With all team members having personal experience of this challenging tumour type, finding a cure is at the centre of everything that we do.

We hope that you draw strength from the knowledge that there are thousands of people around the world who are working together to offer real hope for all of us whose lives are touched by low-grade gliomas. This website aims to bring together key information related to the low-grade glioma community in the UK, whilst information related to the global community can be gained through our online support groups.





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Recent Fundraisers

A massive thank you to all our fundraisers

Latest News

The latest news and information

17th Norfolk Family Walk 2023

Date for your diary! Sunday, 24 September 2023 The Seventeenth Norfolk Family Walk, in aid of brain tumour research and support, is scheduled to take place at Holkham Hall Estate on Sunday, 24 September 2023 10am to 4pm. We look forward to welcoming new walkers as well as our faithful supporters who turn out year […]
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We are excited to report that we are about to fund research into paediatric low-grade gliomas headed by Professor Denise Sheer, Professor of Human Genetics, Barts & The London School of Medicine & Dentistry, Queen Mary University of London.  We have funded Prof Sheer in the past and are delighted to be supporting her and […]
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Well it’s all done and dusted! After much concern about the weather (again this year) and Covid restrictions, the walk went off without a hitch and the weather, in the main, wasn’t too bad! The great news is that, at present the total raised comes to the amazing total of £15,469 (including Gift Aid)! We […]
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