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ACCESS TO VORASIDENIB IN THE UK

VORASIDENIB  SMC SUBMISSION PATIENT EXPERIENCES   WATCH AND WAIT PATIENTS AND THEIR CARERS/FAMILY MEMBERS K “My daughter is 26, autistic and suffers immensely with waiting and then visiting hospitals and not knowing what treatment she will have in respect of her LGG. She is currently on watch and wait until Jan 2026. The idea of […]
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18th NORFOLK FAMILY WALK 2024

    SIGN UP FOR THE 19th NORFOLK FAMILY WALK! Sunday 21st September 2025 FULL DETAILS HERE          
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Research

  HIGHER COGNITIVE FUNCTIONS & RETURN TO WORK IN LGGS Professor Stephen J. Price BSc MBBS (Hons) PhD FRCS (Neuro Surg), Department of Clinical Neurosciences, Cambridge Biomedical Campus We are now into the second year of funding PhD student Jasmine Kennedy who is carrying out this project under the supervision of Prof Price.  A questionnaire […]
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All Party Parliamentary Group for Brain Tumours

COFFEE & BINGO EVENTS Trustee Neal’s sister Carol Blatherwick has donated £100 to ABTF being money raised from coffee and bingo events. We continue to support the All-Party Parliamentary Group (APPG) for Brain Tumours which seeks to raise awareness of the issues facing the brain tumour community to improve research, diagnosis, information, support, treatment and […]
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