THE BRAIN TUMOUR PATIENTS’ CHARTER OF RIGHTS
PURPOSE OF THIS CHARTER
To achieve the best possible health and quality of life outcomes for adults and children living with a brain tumour. To represent an aspirational ideal against which quality standards, policies and practices are developed, monitored and delivered.INTRODUCTIONThere are a number of documents dealing with patients’ rights, some of which relate to the rights listed here. This Charter has been drafted from the point of view of the brain tumour patient and caregiver with particular consideration for the difficulties which can arise while living with a brain tumour. This Charter has been created through a multi-stakeholder, collaborative and iterative process and is a living document, subject to annual review.It is hoped that this Charter will have worldwide relevance. We are mindful that many countries lack basic health, research and manufacturing facilities and the specialists and treatment centres with the capacity to deliver the most modern scientific evidence-based care for brain tumour patients. The Charter therefore represents an aspirational ideal which we should work towards and we hope and expect that it will prompt productive discussion and debate to help initiate positive change.
