Some of the UK brain tumour charities have helplines you can call for information and support related to all aspects of dealing with a brain tumour. Below are details of helplines which are either run by people with personal experience of a low-grade brain tumour, or which offer specialist support services.
Brainstrust – Aged 19, Meg was diagnosed with a low-grade brain tumour, just as she was begining life at university in 2004. Meg’s tumour was successfully resected in Boston, USA in 2007. Meg’s Mother, Helen Bulbeck, founded the charity brainstrust and is dedicated to improving clinical care for brain tumour sufferers and providing co-ordinated support in their search for treatment – worldwide.
For more information about the work of brainstrust call 01983 292405.
Brain Tumour Action runs a Phone Helpline which has been in continuous operation 24 hours a day for over nine years. The telephone is covered by a trained counsellor, Lynne Barty, whose son was diagnosed with a low-grade glioma as a child and is now married and in his late-20s. Specialist neuro-oncology nurses can also give advice if requested.
Telephone: 0131 466 3116
01454 422701 – Support is offered if you have been affected in any way by any type or grade of brain tumour, and whether you are a patient, family member, friend or carer.